Au-delà du regard
Documentary
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Sven has a dream. Once in his life he wants to walk the Camino de Santiago - the Way of St. James. But that seems impossible, Sven has Usher syndrome, a disease which slowly, inexorably robs him of hearing and vision. Profoundly deaf and completely blind since 2010, he can only communicate using a special hearing aid in the spoken language.
When Gordon Gund went blind in 1970 at age 30 due to retinitis pigmentosa, he resolved to find a cure for the disease and created the Foundation Fighting Blindness. After decades of scientific research, a major breakthrough emerged, and this short film showcases the inspirational story of a 17-year-old Belgian boy who is a beneficiary of this work.

The film follows five people who lost their sight in armed conflicts, gathering fragments of their present-day lives. Through an enveloping sound composition, veiled archival material, footage shot by the protagonists themselves, and a sensitive visual approach, the film explores memory, perception, and our relationship to the visible. Steering away from spectacle, it invites us to hear what often goes unheard, and to feel differently. In an age saturated with images, this documentary offers a sensory experience where listening becomes a gesture of resistance and human reconnection.

After losing sight in 1983, John Hull began keeping an audio diary, a unique testimony of loss, rebirth and renewal, excavating the interior world of blindness. Following on from the Emmy Award-winning short film of the same name, Notes on Blindness is an ambitious and groundbreaking work, both affecting and innovative.












